Joined: Jun 2008 Gender: Female Posts: 14 Karma: 0
Re: Aspergers « Result #2 on Sept 29, 2009, 7:35pm »
Hello Mawmaw,
First let me say it is a pleasure to meet you.
As far as getting an official diagnosis, most definitly. I took my daughter to a neuro psychologist. The doctor offically diagnosed her with severe autism. I believe if they could go to one that they would receive dthe diagnosis he needs and then the school would have to continue to give him the necessary resources he needs for learning. I know that it will cost about $1000, give or take, for this. I am sorry to hear they do not have insurance. Hopefully this helps.
Joined: Jun 2008 Gender: Female Posts: 14 Karma: 0
Re: The last time I wrote... « Result #4 on Sept 29, 2009, 7:25pm »
Saved by Grace,
Thank you so much for your kind words. It has been the hardest thing I have ever had to go through in my entire life and I know it will always be. I guess the only thing that can happen now is that it can only go up.
I am sorry to hear that they still have not diagnosed your youngest. I can remember when it seemed like forever before we finally got a diagnosis for Mari.
Hello, I am a grandmother of a child with possible Aspergers Syndrome. His teachers and psychologist have been evaluating him for awhile. They told us he does more than likely have Aspergers. He is now 7 years old. My question is, should we get a professional diagnosis from a doctor? The reason I ask this question is that we have heard that when he reaches the age of 9, he will no longer be able to receive help in his school studies and his classes with ISP special teachers. We don't want to have to fight the system to get him the help he needs in continuing to lead a life that is full of everything he can do and understand. He is above average in his IQ and he has perfect pitch, and also a photographic memory. But those are the good things. He does stemming and has meltdowns and a few other problems such as discipline. He has learned a lot of different emotions and seems to handle those well, he does like to be alone to play, he will also wander and he likes strangers. He has no idea what harm they could do, this is very scary for his parents and loved ones. We have to watch and protect who he is around all the time. He loves trains and things that come apart with little parts. He lines up everything in a straight line. He flaps his hands continually and other such things. His Mom and Dad have been very patient and understanding of these problems and are very glad that someone is willing to listen to them finally that even acknowledges that he has problems. But, they are still at their wits end in trying to find help. They have no health insurance so this is going to be a challenge in itself. If anyone has any suggestions as to getting the diagnosis, and whether it will help in their situation or not I would love to pass on the information to them. Thanks for listening.
Project Lifesaver « Result #7 on May 4, 2009, 11:12pm »
Tonight I was at an Autism Task Force meeting as it was the first meeting in our area and wow......tons of information that I didn't know existed. Among this information was that of something called Project Lifesaver.
If you are like me and have an autistic child who wonders or deliberately runs off.......this is something to check to see if it's available in your area as there are places who are willing to help with the funding or family support grant money can be used to pay for it.
The person with the disability will wear a band on their wrist that gives a signal that can be picked up from a portable device that specially trained people will use to find the missing person. When the person is missing or darts off, the caregiver calls 911 to report the missing person and lets them know that they are on the Project Lifesaver program. They will then send out specially trained people to find the missing person using special tracking equipment that picks up the signal from the device that is worn by the disabled person. This program usually finds the missing person within a half hour or less and as of yet has always found the person alive and without any serious injuries.
This program is brand new to our area and since our family grant money can be used to cover the costs of this program, I'm going to sign my son up for it. It costs $300 the first year which covers the bracelet, batteries, wristbands, any other needed supplies. After the first year the program costs $105 a year. The bracelet is able to be worn in water without losing signal and transmitts a signal for a mile in any direction including up in the air........a huge advantage for those who have children, like mine, who climb trees and hide in them and who won't or can't answer when called.
Human Services or the Sheriff's Department should be able to tell you if it's available in your area.
A little about me « Result #8 on May 4, 2009, 10:37pm »
Hi, I'm a single mom of 3 children. My oldest is being tested for ADHD and ODD. My son is autistic, ADHD, and mild MR. My youngest is showing some possible signs of autism, and developemental delays.
I stopped by to check out the forum here and see if it's what I'm looking for or not.
Autism on the Go « Result #9 on Jan 4, 2009, 4:45pm »
Where do you want to go and what do you want to do? Where have you gone and what have you done? Autism will not hold us back as it is just part of the adventure.
This website includes stories of adventures, trips, vacations and travels from families on the autism spectrum. We want to hear the good, the bad and the amazing. Give and receive advice and suggestions on to travel and to do.
Joined: Jun 2008 Gender: Female Posts: 14 Karma: 0
Re: The last time I wrote... « Result #10 on Jan 2, 2009, 12:43am »
I have created a website dedicated to my daughter. For those of you who would like to visit it, please go to www.mommysangelinheaven.com. For those of you who do not know I am the own of Autism Awareness Online. My daughter was the inspiration for the website and she is the one that passed away on July 16, 2008. I hope you will visit my site solely dedicated to her in remembrance of her beautiful life.
organicmom38 Administrator Administrator member is offline
Joined: Oct 2007 Gender: Female Posts: 2 Location: Buffalo, NY Karma: 0
I Highly Reccommend these Books « Result #12 on Oct 20, 2008, 9:23pm »
I have 2 book suggestions for anyone who is feeling alone and/or is looking for some new treatments that maybe you have not tried yet. The 1st one is " Louder than Words" ( I actually read this book in 3 days - it is that good). The 2nd is "Mother Warriors" ( I am reading this one now). They were both written by Jenny McCarthy and are absolutely a must for any parent wanting more info.
« Last Edit: Oct 20, 2008, 9:25pm by organicmom38 »
Re: Does anyone know... « Result #13 on Sept 28, 2008, 10:09pm »
I was wondering the same thing. My son is autistic, ADHD, and mild MR and anything that may be beneficial to helping to tame his behaviors and some people have mentioned this kind of a diet.
Has anyone actually tried it? Does it help? How long does it take to see results?
Joined: Jun 2008 Gender: Female Posts: 14 Karma: 0
The last time I wrote... « Result #14 on Aug 21, 2008, 10:06am »
The last time I wrote my biggest concern was that my daughter had disappeared for about 30 minutes and we could not find her anywhere. I wish I could now have that day back.
My daughter got sick with diarreha on July 1st. I got a call from the school saying I needed to pick her up. I really thought they were making a big deal out of nothing. Ultimately, it ended up being E-choli which then resulted in going to 4 different hospitals with kidney failure, stroke, cerebral hemorage, and cardiac arrest. I will tell you, when you hear someone say, "Get a crash cart, she is coding" those are words you will never forget. In the end we took our daughter off of life support on July 16th. It was exactly 2 weeks and 2 days to the day that me and my husband lost our precious and one and only daughter. She was 8 years old and will be so very missed.
We would like to welcome you to our message board. We hope this will either be a resource or a support for you in your search for support during your time of need. Our earnest desire is for you to find what you need so that this may be the most beneficial experience for everyone. Please remember that this is a family friendly message board so all non-family friendly material and posts will be deleted. Also, there are no ads allowed to be posted in any thread unless specifically stated otherwise all ads will be deleted. If you need to get ahold us please send us a private message and someone will get back with you as soon as possible.
We would like to welcome you to our message board. We hope this will either be a resource or a support for you in your search for support during your time of need. Our earnest desire is for you to find what you need so that this may be the most beneficial experience for everyone. Please remember that this is a family friendly message board so all non-family friendly material and posts will be deleted. Also, there are no ads allowed to be posted in any thread unless specifically stated otherwise all ads will be deleted. If you need to get ahold us please send us a private message and someone will get back with you as soon as possible.
Site Administrator
« Last Edit: Aug 21, 2008, 9:57am by administrator »
I am an occupational therapist (and candlemaker! LOL) who works with children with autism, SI dysfunction, ADHD, etc. I have been an OT for over 14 years and love it.
I look forward to exchanging info and ideas with all of you.
Weighted Lap Pads « Result #18 on Jul 24, 2008, 7:31pm »
I am an occupational therapist who has experience with children with autism, sensory integration disorders, etc.
I have had some weighted lap pads made which are about 5 pounds each. They are tie dye colored and made of fleece material (soft.) They work great for kiddos who need that extra proprioceptive input in order to sit and attend to tasks (as in church, at a restaurant, at school, etc.)
I am selling them for $25 each. I can send pics upon request. Email info@candlesgiftsandmore.com with questions.
Joined: Jun 2008 Gender: Female Posts: 14 Karma: 0
My daughter disappeared yesterday... « Result #19 on Jun 25, 2008, 8:15am »
Boy was yesterday the most scary and terrifying day of my life.
My 8 year old autistic daughter disappeared yesterday. I have my niece here from California visiting with me for the past 2 weeks so we went to go and visit my friend who lives where we used to live back in December about an hour away. We decided to go to the park district pool to go swimming. We had a fun time at the pool. Well when it was time to go I tool my daughter to the changing room. I am sure most people know how big a changing stall is with the curtain. Well I got my daughter dressed first and then I was trying to get myself dressed while she was in there with me. My friend was in the big changing area with her kids and my niece. I wasn't in there but for more than a few seconds when I cam out and asked her if she had my daughter and she said no. So then we went back out to the pool area and she was no where to be found. We went back into the changing area and she was no where to be found. Went out the door to the entrance area and there is a banquet area and she was not there. Look outside and did not see her there either. Quickly went back inside and back to the pool area and no where to be found. And that is when I really started to loose it. She has absolutely no stranger anxiety. I personally witnessed her go and sit on a lifeguards lap and then try to go up to a woman with her arms up to have this woman pick her up. So I just was petrified. We looked everywhere. The park area. The amphitheater. There is an underpass that crosses a major street and my friend went there and over to a grocery store parking lot and just simply could not find her anywhere.
I was hysterically crying.
Could not think straight. Could not even remember what clothes she was wearing that I had just put on her. It had to have been over 30 minutes and we were literally on the phone with the police when a woman came up to me and told me that someone had found her. I don't think I have ever run so hard in my life before. I had flip flops on and I never even ran out of breathe. This had been the most scary day of my life.:o I was physically sore for the rest of the day and sick to my stomach. My husband and I are just so thankful that she was not only found but that she is now safe and sound. The ironic part to all of this is just the day before on Monday I had had her teacher, and autism consultant, the social worker from the school and the speech therapist in my home basically brain storming and coming up with things that need to be put in place for her safety and other issues we have like potty training her. My husband and I and also my friend are just so thankful that she is all safe and she is home with us. We thank the Lord that she is safe and sound. I just need to tell others about what had happened. Has anyone else ever been through a terrifying experience like this with their autistic child?
I look forward to talking to others to know that I am not the only one who has been through an experience like this before.
Joined: Jun 2008 Gender: Female Posts: 14 Karma: 0
Re: I am so glad... « Result #20 on Jun 8, 2008, 12:50am »
I could not agree with you more. It seems like everywhere you turn or someone you talk to that someone knows someone else with Autism. There are so many hypothisis as to what is going on but who knows. I personally believe it is the toxins in the everyday products we use like shampoo, toothpaste, and laundry detergent to just name a few. I know personally when I went totally non-toxic product and turned my home into a green home that is when my daughter started to say her first words and then communicate. Boy that is such a memorial day. I look forward to getting to know other just like our family.
Joined: Jun 2008 Gender: Female Posts: 14 Karma: 0
Hello everyone, this is Mommy's Little Angel « Result #21 on Jun 8, 2008, 12:46am »
Well I guess I did things a little backward. I went and posted a bunch of posts first and then came in here to introduce myself. I guess it is just more important that I do.
Hello everyone. My husband and I have an 8 year old daughter. She was diagnosed with severe autism at the age of 3. We knew well before she was diagnosed that something was wrong though. She was what it seemed like to be delayed in everything basically from the time she was born. She is so incredibly smart though and the sweetest little angel (as to why my username is Mommysangel). I hope can get to know others on the board just like me as we will all understand so much of what the other is going through. I look forward to that very much.
Mommy's Little Angel
« Last Edit: Jun 8, 2008, 12:47am by mommysangel »
Joined: Jun 2008 Gender: Female Posts: 14 Karma: 0
Had a bad day... « Result #22 on Jun 8, 2008, 12:42am »
Boy today was a hard day for me and my husband. My daughter is 8 years old with severe autism and she just refuses to go potty in the toilet. She knows how to and she will go pee pee but she just won't go poo poo. I wish I knew what to do to help her understand how this would really help her. I know that someone she will. She is just so smart. Is anyone else out there having issues like this?
Joined: Jun 2008 Gender: Female Posts: 14 Karma: 0
Does anyone know... « Result #24 on Jun 8, 2008, 12:39am »
Does anyone know where I can get information on a Gluten Free/Kasin Free (probably spelled that wrong ) diet. I am going to try this for my daughter. She is now 8 years old with severe autism but I would like to at least try.
Joined: Jun 2008 Gender: Female Posts: 14 Karma: 0
Autism Support Groups in Chicago Area? « Result #25 on Jun 8, 2008, 12:37am »
I am curious to know if anyone knows of any support groups in the chicagoland area and inparticular the southside? I am in need of one very much. I just have my days where I would love to be able to talk to someone else who is going through what I do I a day to day basis.
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Saved by Grace,
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) diet. I am going to try this for my daughter. She is now 8 years old with severe autism but I would like to at least try.